all 34 comments

[–]TheChrono 28 points29 points  (6 children)

Jesus fucking christ the music.

[–]forestfluff 9 points10 points  (3 children)

I've honestly never understood the need to add sad music to shit like this. It's already sad. You don't need to force the watcher to feel.

[–]Piercemxpx12 0 points1 point  (2 children)

It’s not just sad music, I think the music sets the tone beautifully.

It remains sad until you find out that he’s going to be okay, then the music shifts into the uplifting type of drama which, personally, is when I started crying, but I wasn’t sad at that point, I was moved.

[–]forestfluff 0 points1 point  (1 child)

It just seems really grossly dramatic and cinematic for a video of something personal. It seems like it was made for an audience in mind already.

[–]Piercemxpx12 -1 points0 points  (0 children)

Well i believe the mother made the video. I could be wrong; but if she did make it, I personally don’t think she would have any reason to be grossly dramatic about her sons illness.

[–]laffer27 0 points1 point  (0 children)

I know right it made me tear up

[–][deleted] 0 points1 point  (0 children)

I thought I was watching Lord of the Rings at one point.

[–]Anticode 17 points18 points  (5 children)

Epidiolex is GW’s lead cannabinoid product candidate and is a proprietary oral solution of pure plant-derived cannabidiol, or CBD.

It's interesting that Marijuana is still scheduled as "The drug or other substance has no currently accepted medical treatment use in the U.S".

[–][deleted] 8 points9 points  (2 children)

I don't see why the active ingredient, cannabidiol, can't be bumped down to Schedule IV in the US, irrespective of ongoing marijuana legalization efforts.

[–]sukhihontu 5 points6 points  (1 child)

I believe there are bills waiting to be voted on in regards to this, I could be wrong, or just sort of wrong. I probably should look into this before answering. BRB

Edit: this might be what I’m thinking of: https://www.congress.gov/bill/115th-congress/house-bill/715

Hasn’t gone anywhere though since it was introduced

[–][deleted] 0 points1 point  (0 children)

Part of me thinks our generation is being way too "greedy" in regards to marijuana legalization and it could be hurting efforts to bring pharmaceutical marijuana products to market.

I wouldn't ever touch the stuff, but honestly, criminalization creates more problems than it solves. If I could have it my way, I'd legalize the stuff, apply the same rules regarding smoking or alcohol to it, whichever is more strict, and prohibit its use in public spaces. Use tax monies from marijuana sales to fund anti drug efforts and to help combat organized crime and illicit production.

Of course, people tend to have very polarizing views about these things and just because I think there are risks to using marijuana, suddenly I'm some anti-marijuana nazi. I want to think I'm actually quite reasonable and that conservative people like me with these points of views are probably some of the best allies the movement needs right now. I mean, it really is mainly conservatives they're trying to convince, after all.

But, I digress. I've gone off largely off topic. Here's hoping this medication is made easier to obtain for patients who genuinely need it.

[–]complex_reduction 2 points3 points  (0 children)

I came into the comments to figure out why a video was being upvoted about epilepsy that had nothing to do with weed.

Then I read your comment which explained that this video is about weed.


[–]Shmooper___Dooper 0 points1 point  (0 children)

Nixon didn’t want to validate the hippies

[–]BrobaFett 10 points11 points  (2 children)

Doc here. We use CBD in a lot of kids with unusual epilepsy. Dravet syndrome being a big one. I suspect they were able to stop his seizures but he needed burst suppression (basically a coma) to do so. Good to hear things worked out for him!!

[–]sukhihontu 4 points5 points  (1 child)

Yep! That’s what the three medically induced comas where for, to achieve burst suppression. They never got the results there were looking for with the first two. It was approx. one week after he was given high dose phenobarbital (I was told at the time it was the highest dose ever given to a pediatric patient... yikes) and it broke status epilepticus, still seizing 12/24 hours a day when we started the CBD.

Edit: wording

[–]BrobaFett 0 points1 point  (0 children)

Nice. Did they use any long term anti-epileptics in addition to the CBD? I think Valproate is pretty standard for these kids but has a rough side-effect profile. Keppra has mixed results.

[–]lordrobb621 4 points5 points  (1 child)

Someones been cutting some onions near by...

[–]seatsniffer 2 points3 points  (0 children)

Yeah! Over here too, and it's fucking midnight!

[–]Creativation1 6 points7 points  (3 children)

It makes one wonder if an extract of CBD from another source would be just as effective? Others have been effectively treated with CBD that was just that, the naturally occurring compound (Charlotte's web comes to mind).

[–]torontohatesfacts 2 points3 points  (2 children)

Epidiolex is exactly that CBD, 98%. What it is is a pharmaceutical company's attempt to patent and get FDA licensing for something that many are already using at a fraction of the cost.

[–]Creativation1 1 point2 points  (1 child)

Epidiolex is exactly that CBD, 98%.

I checked on their site and found no mention of what the complete makeup of the drug is. Do you have a link to that info?

[–]Jimtac 2 points3 points  (0 children)

I’m so incredibly glad to see treatments like this that are actually working, especially for kids. Kids just don’t have the vocabulary or the experience to properly let parents and doctors know what’s happening when there are side effects.

When I was a little kid (3 years old) my parents followed the recommendations of all the doctors and put me on some serious barbiturates just to control my seizures. One day several years after being on them, my mother got frustrated with me when we were out because I just stopped dead in my tracks like I often did, and she asked me why I always had to stop and stand still like that, making the rest of the family wait for me. I told her it was because of the bees, she said that there were no bees anywhere and for me to cut it out and hurry up. After I tried moving by shuffling my feet, she began to cry when she realized that for the years that I’ve been on those drugs I was hallucinating the sound and feeling of bees covering me... I was taken off of them very soon after that.

Thanks to the researchers and to the politicians who are level headed and compassionate enough to not shut down this life changing research. (The rest of them can go to hell)

[–]HoundDogs 7 points8 points  (1 child)

The only way to make sure that more people get these treatments is to increase public knowledge of them, thus creating a demand so aggressive that no lawmaker would dare challenge it.

In other words, I'd recommend that you upvote this post as much as possible.

[–]dgpoop 0 points1 point  (0 children)

On it.

[–]YourOwnPersonalSatan -2 points-1 points  (0 children)